Wednesday, December 12, 2018

Fibro troubles

A year ago this week, I had an emergency appendectomy.

But see, it didn't have to be an emergency thing.

Life with Fibromyalgia: people don't believe you are in pain!

I had stomach pain and stayed in bed all weekend the weekend before, and missed school on Monday. I went to the doctor, who thought I might hall gall stones in the bile duct. She sent me for a CT. The CT showed that it was not gall stones (by the way, I had had my gall bladder removed 6 years ago), but that I might have appendicitis. The pain continued all week, but being that I live my life in pain, I just kept going.

What choice do I have?? I have to work, I have three kids, I have obligations!

So my doctor made a referral to Gastroenterology. They were able to get me in on Friday morning, so I high tailed it out of Duffield, where I work, and headed to the appointment. There, the gastro doctor told me that he had no idea why they sent me to him, that I needed to see a surgeon instead. He called surgery, and there was an appointment made for me later that afternoon.

This is where things started to go wrong.

I saw the same surgeon that had done my gallbladder removal. That, in and of itself, was not a problem. However, I started to have neurological symptoms that might or might not be related to Multiple Sclerosis after that surgery, so I was leery, to say the least.
I wasn't thrilled from the moment that he came in the room. Did he start out talking about my appendix? Nope! He started lecturing me about my blood glucose levels! Now granted, they were not the lowest, but only ONE of those had been taking when I had fasted. My primary care doctor, who is excellent, has never been concerned, so I don't worry about it. But this surgeon who had seen me twice in the last 6 years thought that more important than my painful appendix. Whatever.
Finally he got around to discussing my pain. He was not going to operate. If I was still in pain on Monday, I was supposed to call him. He told me that if I got worse to come to Indian Path, where he was on call. He basically dismissed me because I didn't look like I was in enough pain.

Fibromyalgia, folks. I live with pain. I function with pain. I present as though I am not in pain because that is what I am used to doing day in and day out. This time, it caused me to have to go to the ER on a Saturday night.

Where they were also ready to send me home because they didn't see me in a lot of pain. Thankfully the doctor intervened and said he would operate on me the next morning unless I REALLY wanted him to do it tonight. My husband, bless his sweet heart, intervened and said he would operate tonight. For those who don't know my husband, he is 6'3" and presents a pretty imposing presence, and is a 4th degree black belt in taekwondo! So I headed to the operating room at midnight December 9th/10th. I was back home in less than 24 hours.

By the way, Mr. Surgeon told me in his surprised voice when I went to my followup appointment that I DID, in fact, have appendicitis. Whaddaya know?!

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